Fantastic February! 

It seems to me that the days are going even quicker than last year! It is crazy to think I’ve spent nearly a decade with this wretched illness and in a hospital bed, but things can only get better from now on!

We officially opened our brand new project, ‘Oakley’s Outings’, with our trustee Lorraine, to give seriously ill youngsters a special day out, away from hospitals, nurses and doctors, where they can just be a family. I remember particularly missing being with both my siblings, mum and dad, when I spent many years in hospital without a break. Furthermore, my siblings suffered when they had to be moved from a to b in order for ‘super mum’ and ‘super dad’ to get to the hospital to be by my side. It’s difficult for everybody, so everybody needs a treat. Even if I had been well enough to be granted a ‘wish’ from a charity, I would not have received one because my condition was just too complex. 

This is the same story for our Oakley Star, who had the most horrendous time losing all of his skin, hair, and nails to a condition called Steven Johnson Syndrome. Oakley Star had the worse form called TENS, and was giving 65% chance of surviving. The community came together and ‘Oakleyans’ were wishing him well from all over, raising money for him to go on his wish, which was to swim with dolphins, as he had been denied a wish from a charity. Share a Star have supported him from near enough the beginning but sadly there weren’t many other charities that were able to do the same. Once Oakley recovered enough, we were able to join together to make Oakley’s Outings – a dream that Share a Star and Oakley’s family both had – to be able to send seriously ill children on a day out that they will remember forever! Oakley is now my little dude, being so good when the papers and BBC South East news station came to see what Oakley’s Outings is about.  

Our first outing happened on Valentine’s Day, when we sent our Katie Star to see Wicked at the London Apollo with her family. Katie was born with her insides on the outside and in the last seventeen years has suffered 32 operations to correct it. She had a wicked time and that is what it is all about! What has been lovely, is Katie has been helping us since her treat and is looking to fundraise for Share a Star at her school. She is simply a superstar! Here’s a quick picture of her enjoying her day: 

The rest of Share a Star’s projects have been powering ahead. I have made 10 unique stars and poems in a week for seriously ill youngsters. As much as this means we made another 10 kids into superstars, I just wish there weren’t so many poorly kids. We can’t change that but we can change their journey through it. Making children into the stars that they are, the stars that we look up to, is incredibly rewarding. Something which seems so small but really does wonders. Of course when there is the rarity of having 10 star, we had to play around with some special pictures! 

Unfortunately, I’ve had a bit of blip in my own health, meaning I haven’t been able to do as many Superstar Surprises, but don’t worry I shall be back onto that as soon as possible. 

See you next time!

Love Jessica xx

2015 The Start

Well, I think I may have missed the whole ‘Happy New Year’ moment due to ill health! So here goes: HAPPY NEW YEAR!

There are so many wonderful plans for Share a Star this year that I literally don’t know where to begin! In our mission to help and support as many seriously ill youngsters, we have teamed up with Demelza House hospice, in order to help the children they support. This may seem like a strange move, but for us, it is essential that we reach as many youngsters as possible. No child deserves to suffer alone without support – we know this – and so does Demelza!

Our newest initiative within Share a Star, Oakley’s Outings is brimming with excitement, as we welcome our first granted wish! This shall take place on February 14th, when our Katie Star will be having her wish granted to go and see Wicked with her family at London Victoria Apollo. Exciting stuff! After that, we shall be pushing ahead with this venture, which is available to any Star from Share a Star.

We’ve had many children of late who have been having big transplants done so we’ve been working hard to make sure that hospital is not too boring and their families are well supported. We often work together with a charity called Post Pals and provided three mums on the same ward a bit of TLC and treats of different snacks and food that was bit different to hospital food!

We have some massive thank you’s to say to our wonderful supporters who have fundraised for us. Every penny goes into making a huge difference to youngsters lives and what is better than bringing back a smile and the sparkle to somebody’s face?

“Be a STAR today and support Share a Star on their mission to help others”

Personal updates from Share A Star's founder